14 October 2015
Conference Room 24, National Assembly for Wales
1. Nick Ramsay AM Chair
2. Elin Jones AM
3. Dr Sarah Wright– Skin Care Cymru
4. Dr Hayley Hutchings– prof helping on re
5. Dr Julie Peconi– Swansea School of Medicine
6. Paul Thomas – Chair Skin Care Cymru
7. Rose Bell – Trustee Skin Care Cymru
8. Paul Hewitt - Novartis
9. Professor Andrew Davies – Chair of AMBU LHB
10. James Partridge – Changing Faces
11. Rob Vine – treasurer Skin Care Cymru
12. Jenny Hughes – Dermatology consultant and chair all wales dermatology group
13. Deb Vine – Skin Care Cymru
14. Girish K Patel – Hywel Dda, consultant dermatologist
15. Sarah Griffiths-Little – Icthyosis Support Group
16. Valerie Loftus – British Dermatology Nursing
17. Max Murison – Consultant Plastic Surgeon, Swansea
18. Dave Hill, Betsi Cadwaldr
19. Avad Mughal, Consultant Dermatologist,ABMU
20. Iain Whitaker, ABMU
21. Caroline Lewis – Senior Policy Officer, Welsh Government on behalf of the Deputy Minister for Health
22. Professor Keith Harding, Welsh Wound Innovation Centre
23. Dr Bhakri, Cardiff University
24. Dominic Urston, Psoriasis Association
25. Rachel abbot – derma fellow, Cardiff and Vale UHB
Apologies
Liz Allen, British Skin Camouflage
Kirstie Williams, AM
Anita Ralli, Leo Pharma
Hamish Laing, ABMU
The group watched a digital patient story setting the context for discussion. More patient stories can be viewed at www.skincarecymru.org
Nick Ramsey welcomed the attendees, and explained how cross party groups operate.
Elin Jones AM and Kirsty Williams AM have agreed to co-sponsor with Nick Ramsay in order to officially form the group.
Nick Ramsay AM to chair.
Skin Care Cymru to provide secretariat.
Dr Hayley Hutchings, Deputy Director of Swansea Medical Trials Unit and Dr Sarah Wright Skin Care Cymru addressed the meeting and outlined the ambition of Skin Care Cymru to gain a better understanding of reality of secondary care and provision of supporting people psychologically with their skin conditions.
Dr Hayley Hutchings and Dr Sarah Wright outlined the research Skin Care Cymru are undertaking. They’ve contacted all LHB’s in Wales to get a better understanding of services across Wales.
Unfortunately not all LHB’s have responded.
The preliminary findings show that there are problems with gaps in information.
There is a lack of standardized monitoring across LHBs and there are major implications for not understanding what’s going on.
There are also some examples of good practice- engagement with GPs etc and that these examples of good practice should be shared and developed.
Skin Care Cymru will be publishing their final report by end of November
The group heard of two examples of Innovation in Skin health in Wales. One from Hywel Dda LHB and one in Swansea.
Demand outstripping capacity across the LHB area, and across Wales.
Estimated that over 10% outpatients are derma patients.
Outlined the capacity issues in Hywel Dda and outlined the new approach to skin care.
First element has been training of New Dermatology GpwSI’s and building capacity and training home grown talent.
Have created an academic centre in order to build capacity and attract consultants.
www.cardiff.ac.uk/research/cancer-stem-cell
Second phase has been working with Macmillan to add capacity through joint funding of Derma nurses.
Hywel Dda now has 5 Macmillan Derma nurses, one in each authority area within LHB – an extra one in Carmarthen due to bigger population with one to cover across the LHB area.
Would like to do the same for biologics and systemics therapies within Health Board area.
This new approach removes the need for patients to travel. The team will travel to patients. GPs have training to support patients and the nurses are the glue that holds it all together.
Skin Care Cymru discussing looking at industry partner support for added nursing capacity across Biologics and Systemics, more information will be shared at the next meeting.
Questions surrounding funding method and working with Macmillan.
Questions also surrounding how GPs who haven’t received training refer? Empower GPs to see to improve primary care knowledge base
Any other areas across UK doing good work?
Good practice in other places, but this model has been pieced together and Macmillan has identified the Hywel Dda Model as innovative and best practice– first in UK and hoping that it will be rolled out.
Psycho-Social Care for patients?
Macmillan nurses will provide Holistic needs assessment and therefore opportunity for any potential Skin Care Cymru nurse to do the same. Will be requirement for LHBs to then address the identified needs.
A
presentation was given on the Laser work being undertaken in
Swansea.
Many examples of Laser treatment shown and discussion surrounding
Surgery compared with Laser.
The Results to help with scars and anxiety of treatment was discussed.
A discussion about capacity and where the treatment is available was held.
Not enough capacity to meet demand
Action: Nick Ramsay to visit Carbon Dioxide Laser in Swansea
· Dr Jenny Hughes - Dermatology consultant and chair all wales derma group outlined the membership and objectives of the All Wales Dermatology group.
It’s a group of all Dermatologists in Wales – trainees, consultants, nurse representative, GP representative, with academic input.
Support each other to share best practice.
Report to Welsh Consultants Committee and Welsh Government
Meeting twice a year – every March and October.
People are welcome to get involved.
There are difficulties in getting GPs to interact with the group
Minister will look at Derma policy in the New Year.
A paper was discussed at the All Wales Medical Group in July, on whether LHBs follow standards and professional practice.
Dr Chris Jones Deputy Medical Director also discusses service development with NSAG. Meeting has been held and discussion on-going.
WG isn’t in position to look at more delivery plans.
Plan cared services plans will be published – will look if derma can be on agenda
Deanery has mentioned that an all Wales training programme not appropriate at this time.
Conversation with Chief nursing officer to discuss specialist nursing – NSAG looking at gaps in skill mix of profession.
Limited resources – no money to invest, money is with LHBs, but can put plans in place.
NHSWIS informatics system– keen to help in this area – telemeds to help with derma – wanting to explore what’s possible.
It was decided that a meeting should be held in the New Year and representatives from each political party should be invited to attend to outline their policies for Dermatology ahead of the Assembly Elections in May 2016.
It was decided that Skin Care Cymru would draft policy objectives it wishes to endorse and will circulate to the group for input, and further ideas.